I get a lot of the same questions so I thought I'd do a little Q&A. I’m going to give the REAL answers and not the normal “oh fine thanks.” Feel free to leave comments or send me an email with more questions.
Q: You look good, you back to normal now?
A: I have hair now with a short hair cut. You can’t tell I have a titanium plate in my head or see all the scars. Normal for me will never be as it was before. I’m still trying to find out what normal is now. So the answer is no.
Q: So you ready to start back to work?
A: This always bothers me because I look normal and if I’m at the top of my game (rested up and ready) I can pass off as a pretty normal person. This doesn’t last for long but I never put myself in situations where it has to. The short answer is no.
Q: Well why can’t you work?
A: I cannot even say my ABC’s. I still sleep for 12 hrs a night and I’m on enough seizure meds to knock out a horse. Work is not in the future.
Q: When are you going to start driving again?
A: I do not know. Legally I have to be seizure free for 6 months. I’m currently at about 3. Duke does offer a test that evaluates your driving skills. At the moment it does not appear that I would get close to passing. I cannot multitask and that poses problems with driving.
Ok that’s enough for now. Off for a nap!
Monday, November 30, 2009
Monday, November 16, 2009
BOYCOTT Holt Lake BBQ & Seafood
I didn't realize it had been so long since I'd updated the blog. I've spent time Mom and Dad, having lots of fun. Dad's retired so I can just ride around with him all day.
Oh yeah....
BOYCOTT Holt Lake BBQ & Seafood
I went in for dinner last week and was refused a child's plate. Even though I've been off chemo for almost 3 months I still have a problems eating. Heck I had to get over the smell of fish when I walked in just so I could eat. I get overwhelmed with lots of food so I get kid's plates every where I go. Never been refused. Until that night.
The waitress was very nice and told us how her Boss had advised them in the last staff meeting that only children were allowed to eat a child's plate. That if she sold me one, she'd get fired.
I was kinda amazed. Here I am, a cancer patient being refused a small plate of food. It's not like there were not 3 adults ordering BIG plates with BIG prices with me. Or that the item should be priced in accordance with how much food is on the plate, not the age of the person eating it.
Dad decides he's going to go ask the owner what the deal is. He explains that his daughter is with him and my situation. The owner says, OK we'll do it THIS TIME. Oh that was it. How can you not sell a small plate of food to someone with a small appetite? Why do I have to waste food?
We would have left but we'd already ordered and were waiting for the last person to arrive. She got there as they were putting the plates on the table.
By the way, I didn't eat anything. I refused to order food that I would not eat.
No way in hell I'm ever going to eat anything there again.
I've told everyone I've seen not to eat there and the reason. To my surprise everyone I talked to says they don't eat there anyway!
Oh yeah....
BOYCOTT Holt Lake BBQ & Seafood
I went in for dinner last week and was refused a child's plate. Even though I've been off chemo for almost 3 months I still have a problems eating. Heck I had to get over the smell of fish when I walked in just so I could eat. I get overwhelmed with lots of food so I get kid's plates every where I go. Never been refused. Until that night.
The waitress was very nice and told us how her Boss had advised them in the last staff meeting that only children were allowed to eat a child's plate. That if she sold me one, she'd get fired.
***wait a minute - waitresses have to go to staff meetings?!?***
Dad decides he's going to go ask the owner what the deal is. He explains that his daughter is with him and my situation. The owner says, OK we'll do it THIS TIME. Oh that was it. How can you not sell a small plate of food to someone with a small appetite? Why do I have to waste food?
We would have left but we'd already ordered and were waiting for the last person to arrive. She got there as they were putting the plates on the table.
By the way, I didn't eat anything. I refused to order food that I would not eat.
No way in hell I'm ever going to eat anything there again.
I've told everyone I've seen not to eat there and the reason. To my surprise everyone I talked to says they don't eat there anyway!
Thursday, October 29, 2009
Catching Up
It's been a fun couple weeks.
> Spent a week a Dad's hanging out, eating, and buying/selling golf carts
> Got to hold Peanut for as long as I wanted and got lots of kisses from Maci
> Got to go see the goats, baby cows, ducks and little ponies at Danny's
> Got a "looking Great" from Duke. Then the standard return in 2 months with a new MRI
> Meet with the therapist and a psychiatrist. They gave me drugs. This is when you know you're crazy. (but it's helping)
> Slept with Baxter almost every night.
> Missed Ronnie and Hank and Tiger and Scottie but mostly Ronnie
Then I came home and rested.
I have determined I am not up to snuff. I cleaned the house yesterday. You know the normal floors (vacuum & mop), dust, clean the kitchen and bathrooms. Nothing intense or major just a little cleaning. It kicked my butt. Like I was in bed by 9 and asleep by 9:15ish. And I didn't want to get up this morning either!
Hunting season is kicking in so I'll be hanging out with friends and family more often. I could be posting a lot or a little depending on what's going on. Hopefully a pic of the huge buck Ronnie kills :) will be coming soon!
> Spent a week a Dad's hanging out, eating, and buying/selling golf carts
> Got to hold Peanut for as long as I wanted and got lots of kisses from Maci
> Got to go see the goats, baby cows, ducks and little ponies at Danny's
> Got a "looking Great" from Duke. Then the standard return in 2 months with a new MRI
> Meet with the therapist and a psychiatrist. They gave me drugs. This is when you know you're crazy. (but it's helping)
> Slept with Baxter almost every night.
> Missed Ronnie and Hank and Tiger and Scottie but mostly Ronnie
Then I came home and rested.
I have determined I am not up to snuff. I cleaned the house yesterday. You know the normal floors (vacuum & mop), dust, clean the kitchen and bathrooms. Nothing intense or major just a little cleaning. It kicked my butt. Like I was in bed by 9 and asleep by 9:15ish. And I didn't want to get up this morning either!
Hunting season is kicking in so I'll be hanging out with friends and family more often. I could be posting a lot or a little depending on what's going on. Hopefully a pic of the huge buck Ronnie kills :) will be coming soon!
Friday, October 16, 2009
I want to drive!!!!!
I want to drive. I mean I really (really, really, really) want to drive.
I've been feeling better and I'd like to go somewhere by myself. You know, take as long as I want without someone looking over my shoulder. Buy stupid stuff that no one will ever find out about. Grab Hank and go eat French Fries at McDonald's or head over to the dog park. That kinda thing.
We've been talking about it a lot lately. There's a test you can take at Duke that assesses your driving skills. Thinking about when to take it.
Well I got my butt handed to me on a silver platter. No way I'm going to be driving anytime soon. (insert crying sound here)
Ronnie had written up a short, couple paragraphs, statement that he needed typed up. He's a hunt & peck typer so I've always typed it for him. I'm talking maybe 5 minutes of work once I figure out his chicken scratch.
So I take his paper and get started. I did good for the first couple of sentences then it all went to Hades. I honestly could not get the words from the paper through my head into my fingers and on the screen. Somewhere between me looking at them and getting them into head it all went wonky. I'm talking shaking hands, not being able to follow sentences kinda stuff.
That's when we realized that if I cannot even follow that, there's no way I can do all the multitasking required for driving.
My little heart is broken but I'll get through it somehow.
I've been feeling better and I'd like to go somewhere by myself. You know, take as long as I want without someone looking over my shoulder. Buy stupid stuff that no one will ever find out about. Grab Hank and go eat French Fries at McDonald's or head over to the dog park. That kinda thing.
We've been talking about it a lot lately. There's a test you can take at Duke that assesses your driving skills. Thinking about when to take it.
Well I got my butt handed to me on a silver platter. No way I'm going to be driving anytime soon. (insert crying sound here)
Ronnie had written up a short, couple paragraphs, statement that he needed typed up. He's a hunt & peck typer so I've always typed it for him. I'm talking maybe 5 minutes of work once I figure out his chicken scratch.
So I take his paper and get started. I did good for the first couple of sentences then it all went to Hades. I honestly could not get the words from the paper through my head into my fingers and on the screen. Somewhere between me looking at them and getting them into head it all went wonky. I'm talking shaking hands, not being able to follow sentences kinda stuff.
That's when we realized that if I cannot even follow that, there's no way I can do all the multitasking required for driving.
My little heart is broken but I'll get through it somehow.
Wednesday, October 14, 2009
High School Reunion
This past weekend I attended my 20 year High School Reunion. Seriously, there's no way it's been that long and no way I can be that old. Either way, we had a reunion and it was FUN.
I had a great date: DAD! It was the opening day of deer season and Ronnie didn't get to hunt last year so I let him go hunting. That meant Dad got to walk me in and get to see all the people he hadn't seen in years either. Well, some he had seen more recently than others.
What did I notice? We all looked the same - basically. Some of us liked it to have the lights on and the music down, the very opposite of the way it used to be. But we're already planning the 25th reunion and the changes we'll need.
I think I accidental nominated myself to the help get the next one going. How did I do that? I asked who was. Darn, never ever ask questions like that!
I was a little different too. I didn't close the party down but rather pulled Dad out about 10pm. I was tired. He bought me dinner when we left, McDonald's so we could take out meds. Things do change :)
I had a great date: DAD! It was the opening day of deer season and Ronnie didn't get to hunt last year so I let him go hunting. That meant Dad got to walk me in and get to see all the people he hadn't seen in years either. Well, some he had seen more recently than others.
What did I notice? We all looked the same - basically. Some of us liked it to have the lights on and the music down, the very opposite of the way it used to be. But we're already planning the 25th reunion and the changes we'll need.
I think I accidental nominated myself to the help get the next one going. How did I do that? I asked who was. Darn, never ever ask questions like that!
I was a little different too. I didn't close the party down but rather pulled Dad out about 10pm. I was tired. He bought me dinner when we left, McDonald's so we could take out meds. Things do change :)
Friday, October 9, 2009
A Year Later
Well, a year ago I had just found out I had a brain tumor, it was cancer and was having surgery. I've actually not thought about it a lot.
But today we came full course. I had lunch with Jolena today.
A year ago I was in a car on the way to have Margarita's and Mexican food with my friends: Jolena & Chris, Kate, and Dawn. Dinner got interrupted initially by the seizure and then things went all to hell with the tumor.
I realized that a year later, I was finally having that Mexican food. I have come full circle.
Finally made it, just took me a while.
But today we came full course. I had lunch with Jolena today.
A year ago I was in a car on the way to have Margarita's and Mexican food with my friends: Jolena & Chris, Kate, and Dawn. Dinner got interrupted initially by the seizure and then things went all to hell with the tumor.
I realized that a year later, I was finally having that Mexican food. I have come full circle.
Finally made it, just took me a while.
Wednesday, September 30, 2009
Pick up Stix
I'm sure lots of you remember the cool game of Pick Up Stix. You'd have a can of sticks that you dropped on the floor. You'd then try to pick up a stick without disturbing the other sticks. Kinda like a very low tech version of Operation.
I made my very own home version of Pick Up Stix! But with this version you use Spaghetti. Just take a box of Spaghetti, don't need any particular brand, the store brand works just fine. Pick up the new box checking to see which end to open. Realize as 100s of noodles hit your bare feet that the box was in fact not new and had been opened at the end pointing down. You know get to play Pick Up Stix as long as you want! Or you can do as I did and just get them all up and put them in the trash while having your husband laugh his butt off while he trying to keep the dog from eating the noodles.
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