Cleaning the Kitchen

I know everyone is tired of all the info about doctors and diagnoses, I know I am. So I'm going to give you a little funny for today.

I try to keep the kitchen clean. By clean I mean, dishes in the dishwasher, counters clean, and the floor not covered in dog & cat hair.

So I grab the Fantastic (obvious plug here, they should send me a free bottle) and start cleaning the counters. I have no idea how our counter tops get so dirty but every morning they are nasty. So I start on the right side, spraying everywhere. I think, this isn't spraying right. So I wipe up that area and change the spray nozzle to get it back right. I start spraying the middle and think, it's still not right. So I check the nozzle again and it's the same pattern on both sides. Oh well, I move on. I spray the left side and realize not only is it not spraying right, it doesn't smell right either. So I check the bottle, yeah blue bottle of cleaner. Wait.... that doesn't say Fantastic, no that's Spot Shot. Well DUH! No wonder it doesn't spray or smell right!

I had to re-clean the entire area again with Fantastic. At least the counters are clean.

New Day - New Week

The start of a new week - Another day at the Neurologist.

I had my in follow up about the EEG and the general state of things. Everything looks to get going well with the brain waves. I have to get help controlling the stressors that cause the pseudo seizures. Once we have that under control we can start easing off the Dilantin.

Why is this cool? I'll be down to only 2 seizures meds; 4 less pills a day. Dilantin interferes with pretty much every other drug in the world so I could take fun stuff like Tylenol or Midol. I could pop a Tylenol Sinus if I had a headache.

Results - Kinda

After almost 2 weeks and wearing that EEG for 48 hours I finally have the results. There is no sign of epileptic activity in my brain. WTF?!?

I'm having Psychogenic non-epileptic seizures aka pseudo-seizures. This means there are no abnormal brain waves when I'm having "issues" that it is most likely STRESS related. I cannot begin to imagine why I'd be having stress issues? Let's see: brain cancer, seizures, husband with cancer, can't drive so I'm stuck at home 24/7 with basically no control over my life. Can't imagine why I'd have any stress or even a little depression.

Great, so I have to get myself together before I can get myself together...

It's a dog eat dog world and I'm wearing my Milk-bone underwear.

Still Waiting

My Noggin is still Nutty. I'm waiting for the results from the EEG. Nothing exciting there. Hopefully we'll find out something out next week and get a plan to turn things around.

Other notable items:

• Hank had a bath! He smells better at least
• The umbrella is D E A D. How do you keep one from blowing over? It has the little wind flaps at the top and it's in a heavy base.
• Tick #2 removed from my ankle this week. I'm beginning to think I'm a tick magnet.
• Chocolate Milk makes everything better.

My rant for today: My hair is growing back in. It's curly/wavy or sticking straight up. This does not look well with my existing straight flat hair. The hair growing in on the right side (where it thinned) is making my straight flat hair stick our OR I just have random curly springs coming out. I've found the only way to fix it is with a hat. On the plus side my pony tail is now 8 inches long so I'm getting closer to donation length.

Waiting on EEG results

Last time I published was a while ago. This seizure crap is for the birds. I'm not having a seizure every day, just feeling like I'm going to have one.

I wore the ambulatory EEG for 48 hours and I'm still finding sticky stuff all over my head. And there's a EEG lead imprint on my forehead - still! Oh yeah, I had it taken off on Friday. Hopefully they will find something and get this all straight.

I had to cancel a beach trip. Why? I cannot ride in a car w/o almost having a seizure; no way I could ride for 3 hours.

I am fortunate that everything with the tumor is looking "stable"

Yes I'm a little frustrated cause it's cramping my already very cramped style. And I'm cursing like a sailor so I'm trying to stop. I suggested a jar that I had to donate to every time I said a bad word. My husband told me I'd go broke.

The Results are IN!

I have not written in a while. I know even one has been on pins and needles waiting for an update. It's been an interesting few weeks: seizures, MRIs, CT scans of the abdomen, I'm still "off."

The MRI and CT scans all came back clear - YEAH! Unfortunately I'm not back to normal yet. If I do more than 1 thing at a time - trouble. I don't exactly have a seizure but I have seizure like symptoms. And I mean little things, like looking at TV while someone talking to me. Yeah, fun stuff. I mostly stay in my little cave and try to keep the distracts down.

The results for the Neuropsychology test are in; let's just say the end was "100% disabled." It's never fun to have someone tell you that your brain is all screwed up.

Ok I have to go back to my little cave now. Starting to have those symptoms again.

I am Rogue

For those that do not know, hair color doesn't mix with radiation and chemo. No big deal except I have a very clear white (I'm not calling it gray) strip right in front. My friends have now decided I'm Rogue from the X-Men. I think that's awesome and I'm sticking with it.

FYI: that's exactly where the stripe is too!